I'm looking for raw data regarding kidney transplant or any organ transplant in order to perform a survival analysis with random effects given by some kind of attributes such as hospital dimension/location.
1 Answer
It seems that some of the information you are looking for is available but not completely out there in the open. Some leads to track down:
- Scientific Registry of Transplant Recipients' standard analysis file (SAF): http://www.srtr.org/data_request/saf.aspx seems to be raw data. You can see that many of the fields you are looking at are available in the data dictionary. It isn't 100% clear to me how you get your hands on the actual data however.
- The US HHS Organ Procurement and Transplantation Network has aggregate data on many related things including survival at https://optn.transplant.hrsa.gov/converge/latestData/step2.asp