Looking for sources of available de-identified EHR/EMR datasets that would be suitable as a benchmark to compare against existing datasets.

This would be similar to what is available from QResearch: https://www.qresearch.org

This is for a US-based project though, so US sources would be ideal.

Thanks

First check out https://healthdata.gov/. The US government has a lot of targeted data sets that may be exactly what you need or at least get you started.

As far as accessing "non-gov" data, I've been implementing EHRs for a decade and I've yet to see organizations make that available other than through an HIE. There are a lot of regulations in the industry and security tends to be very tight.

That being said, I do have a couple of ideas that may help. If you were able to volunteer at a healthcare organization as an analyst (e.g. Volunteers in Medicine) you'd be able to get access to their data.

Moreover, if your research will help a hospital or large medical group solve a pressing problem, data access may not be an issue and they'd be willing to help you out.

  • Thanks very much for your answer. healthdata.gov looks to be a great resource. Yes, indeed, this question is in relation to a project within a healthcare system. – David Orchard-Webb Sep 13 at 15:43

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